THANK YOU! We have had the most amazing Team CHIbra fundraiser ever! We hit our first goal of $20,000, then hit our second goal of $30,000, and then hit that right out of the park! We are so grateful for every Team CHIbra member that created a fundraising page, and every donation that came in. Together, we raised a grand total of over $36,000 dollars for hyperinsulinism research.

"It doesn't matter where you are in your journey with hyperinsulinism...when a low hits you... it hits you hard." A #RareDiseaseTruth from HI Mom Kiersten Smith.

We know that living with Congenital hyperinsulinism (HI) is hard, and that is why Team CHIbra is raising funds to address the critical need for research for diagnostic tests that would increase timely diagnosis of HI, tools for better management, new treatments, and one day, a cure.

HI is a life-threatening disorder that causes dangerously low blood sugar levels. Prolonged or severe low blood sugar can cause seizures, brain damage, and even death. The consequences of HI are preventable however, HI is often overlooked, misdiagnosed, or even when detected, mistreated.

We hope you can join Team CHIbra in raising HI research funds again this year! We are raising these funds as part of the Million Dollar Bike Ride initiative, a project of the Orphan Disease Center of the University of Pennsylvania, our partner in funding research - who will be matching the first $30,000.00 of our donations! Learn more here: https://www.milliondollarbikeride.org/

Our fundraising timeline is short to reach our goal of raising $30,000 by June 30, 2021. Every donation counts - big and small!

Thanks to all of you, Congenital Hyperinsulinism International (CHI) has raised over $520,000 for congenital hyperinsulinism research over the past 8 years. Let's keep funding research for a brighter future!

How can you support Team CHIbra this year?

* Share this page with friends and family via email and social media to ask for their support to raise funds and awareness. Donate $5, $10, $25 - every gift matters.

* OR click the orange Start Fundraising button to the right and you'll be on your way to creating your own Team CHIbra fundraising page that you can share with friends and family. Maximize your fundraising impact and personalize your fundraiser with stories, photos, and videos. You can manage your fundraiser from start to finish on your personal fundraising page.

Join Team CHIBra and get going today! All fundraising must be completed by Friday, June 30, 2021.

Need a hand? Call Jennifer Schmitt, Associate Director, CHI, at 973-544-8372 or email jschmitt@congenitalhi.org.

Past fundraising efforts have resulted in the following research grants (graphics in photo gallery at top of this page):

*2020 Grant Recipient: Dr. Indraneel Banerjee, University of Manchester, Royal Manchester Children's Hospital for maximizing the utilization of the Hyperinsulinism Global Registry (HIGR)

*2019 Grant Recipient: Thomas Smith, PhD, University of Texas, Medical Branch, for new therapeutic treatments for the hyperinsulinism/hyperammonemia syndrome (HI/HA)

*2018 Grant Recipient: Dr. Amanda Ackermann of the Children's Hospital of Philadelphia for Vitamin E supplementation in hyperinsulinism/hyperammonemia syndrome.

*2017 Grant Recipient: Dr. Diva De León-Crutchlow of the Children's Hospital of Philadelphia and the University of Pennsylvania for a pilot study of the bihormonal bionic pancreas for the treatment of diabetes post-pancreatectomy in children with congenital hyperinsulinism.

*2016 Grant Recipient: Dr. Changhong Li of Children's Hospital of Philadelphia for drug development for a treatment for glutamate dehydrogenase hyperinsulinism.

*2015 Grant Recipient: Mark Dunne, BSc, PhD, of the University of Manchester, for research towards precision medicine in the treatment of congenital hyperinsulinism in infancy.

*2014 Grant Recipient: Dr. Diva De León-Crutchlow for a pilot study of the efficacy and safety of sirolimus in the treatment of congenital hyperinsulinism.