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We did it!

Our campaign is now complete. 16 supporters helped us raise US$1,275.00

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Closed 30/06/2021
US$1,275
raised
by 16 supporters
Donations cannot currently be made to this page
Event: SWF Million Miles for Sturge-Weber Syndrome, from 1 April 2021 to 30 June 2021
Closed on 30/06/2021
RCN 742485813

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Story

The Million Miles for Sturge-Weber Syndrome is the Sturge-Weber Foundations 2021 initiative to:

1. Continue in the vision of C.A.R.E. for the patients and families that live daily with this incurable rare disease

2. Raise much needed funding for research, educational advancements and conferences for patients and professionals, global collaboration

3. Make the general public aware SWS exists, how it impacts patients who are diagnosed and their families

4. Provide an avenue for the general public to be a part of the solution in finding a cure.

About the charity

We exist to improve the quality of life and care for people with Sturge-Weber syndrome and associated Port Wine Birthmark conditions. We support them with collaborative education and advocacy in tandem with translational research as we promote effective management and awareness.

Donation summary

Total raised
US$1,275.00
Online donations
US$1,275.00
Offline donations
US$0.00
Direct donations
US$0.00
Donations via fundraisers
US$1,275.00

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