About Hailey

Hailey is an amazing 1 year old girl who has Sturge-Weber Syndrome (SWS). SWS is a progressive neurological disorder that is very rare. The most visible part of the disease is a Port Wine Birthmark. It is created by enlarged blood vessels that can cover part of the brain. Of those born with a Port Wine Birthmark, 3% will develop SWS. 1 in 50,000 babies are born with this disorder. Hailey is one of a small percentage who has both! This disease can cause seizures, developmental delays, glaucoma and many more health concerns.