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Closed 30/04/2023
Med13L Foundation

In Honor of John Thomas Tisdall

In honor of John's grandson, Henrik Thomas, and in lieu of flowers, cards or gifts, we know John would prefer everything to go to his grandson's rare disease organization, MED13L Foundation.
US$2,775
raised
by 32 supporters
Donations cannot currently be made to this page
Closed on 30/04/2023
RCN 822469441

Story

On March 18th, 2023, John Thomas Tisdall, passed away in his home unexpectedly. In honor of John's grandson, Henrik Thomas, and in lieu of flowers, cards or gifts, we know John would prefer everything to go to his grandson's rare disease organization, MED13L Foundation. John was a family man above all else and loved his children and grandchildren dearly. He followed the MED13L medical advances closely, as his second oldest grandson, Henrik Thomas, was born with this rare genetic condition impacting his ability to speak as well as several other health concerns.

If you knew John, you knew he loved to be on the water, a self proclaimed Water Dog. Windsurfing, sailing, waterskiing, fishinghe lived for the wind in his hair, the sun on his skin and the water on his feet. He played guitar and wrote many of his own songs, which live on in his childrens hearts. He could build an engine, ride a hardtail and coach a hockey team but then turn around and put on a suit to sell a million dollar home. You have never met a more proud father and grandfather, his children were all he talked about. He was unapologetically authentic, he lived life on his own terms yet supported his family in every way possible. He traveled the world, sailed many seas and howled in the wind until his last days.

John would be honored if you supported his grandson, Henrik, to give him the best shot possible at excelling in life.

About the charity

The MED13L Foundation coordinates and collaborates with the global scientific community to understand the function of the MED13L gene in order to develop effective treatments and a cure for MED13L syndrome. The Foundation also provides educational and emotional support for those affected by MED13L.

Donation summary

Total raised
US$2,775.00
Online donations
US$2,775.00
Offline donations
US$0.00
Direct donations
US$2,775.00
Donations via fundraisers
US$0.00

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