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Our campaign is now complete. 45 supporters helped us raise US$1,570.00

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Closed 30/06/2021

SWF Million Miles - Nemours' Team

Nemours Hospital for Children Team page for SWF Million Miles

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Closed 30/06/2021

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We exist to improve the quality of life and care for people with Sturge-Weber syndrome and associated Port Wine Birthmark conditions. We support them with collaborative education and advocacy in tandem with translational research as we promote effective management and awareness.

Story

The Million Miles for Sturge-Weber Syndrome is the Sturge-Weber Foundations 2021 initiative to:

1. Continue in the vision of C.A.R.E. for the patients and families that live daily with this incurable rare disease

2. Raise much needed funding for research, educational advancements and conferences for patients and professionals, global collaboration

3. Make the general public aware SWS exists, how it impacts patients who are diagnosed and their families

4. Provide an avenue for the general public to be a part of the solution in finding a cure.

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Donation summary

Total
US$1,570.00
Online
US$1,570.00
Offline
US$0.00
Direct
US$50.00
Fundraisers
US$1,520.00

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