Our daughter, Nora recently turned 3 years old. She is an overall happy girl who loves to be around her family including her two brothers, Cameron and Connor. She enjoys the breeze and fresh air during our walks outside. Nora is faced with many challenges including daily seizures and global developmental delay.

She was diagnosed with CDKL5 deficiency disorder when she was just 6 months old. Although it is unbearable to think about at times, Nora brings us more joy than we could ever imagine. She continuously reminds us of what is really important in life. We continue to remain hopeful for a better future for Nora.

Thank you to all our family and friends for all the love and support. We could not do this journey without you!