In 2018, aged 6, my niece Rose was diagnosed with Ataxia Telangiectasia (A-T) - a rare degenerative condition which generally appears in early childhood and in most cases leads to full-time wheelchair use before the early teens. There is currently no cure for the condition. Average life expectancy is between 20-30.

Rose's diagnosis broke my heart, but nothing can compare to how it's impacted my sister, and the whole family. Since the diagnosis Rose's family have done everything to adapt their lives for Rose and give her a life full of love and happiness, but they simply couldn't have coped without the amazing support of charities like the AT Society and Action for A-T who work everyday to identify a cure and support families and children impacted by the condition.

A huge thank you for any donations to support a brilliant organisation that do so much to combat a relatively unknown and devastating condition for children and young people like Rose. More info on their work below.

Action for A-T provides support and funds high quality peer reviewed medical research to speed up the process of identifying a cure for Ataxia Telangiectasia (A-T). For more information on the condition, visit our About A-T page.

Since 2012 we have invested more than £4,000,000 in 46 A-T related research projects which offer hope to the families living with this devastating condition. This has only been possible thanks to your generous support for which we are truly grateful.