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Mimi's Pit Crew Moving CDKL5 Forward

Rachel Neumann is raising money for International Foundation For Cdkl5 Research
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Move CDKL5 Forward 2024 · 15 May 2024 to 30 July 2024 ·

June is CDKL5 awareness month and we are getting out to walk, run, bike, MOVE to raise awareness and funds for the International Foundation for CDKL5 Research and CDKL5 Deficiency Disorder! Join us as we Move CDKL5 Forward towards a healthier future!

Story

Join Mimi's Pit Crew and help us move #CDKL5forward on the road to a cure this June 2024 CDKL5 Awareness Month! Over the past three years, Mimi's amazing pit crew has raised almost $30,000 towards a cure. I'm going to need EVERYONE'S help to keep the momentum going!

Over the month of June, I'm going to be walking, hiking, and hopefully kayaking to move CDKL5 research forward. I'll be documenting my activities on Instagram and tagging them #CDKL5forward and #MimisPitCrew to raise awareness. You can "donate" your workouts to CDKL5 awareness, too, by using the same hashtags. If you mention me in your posts, I'll share them on my account, too. Even better, if you're local to LA, let's build our buns of steel together. If we work really hard all month, we *might* get to be half as buff as Mimi (if you know her, you know she's built like a bodybuilder).

I'll also raise awareness by getting real in my stories about life with CDKL5 for Mimi and for our family. Behind all the happy pictures in the gallery above (click on "Gallery") are struggles that impact every aspect of daily life.

Please support my efforts by giving financially whatever you can through this page. How much? A cure won't come cheap, but whatever you can give will help. Mimi and everyone waiting for a cure need you!

Thank you from the bottom of my heart!

Donation summary

Total
US$13,419.91
Online
US$11,619.91
Offline
US$1,800.00

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