This May we are participating in Dazzle Walk 2023 to raise money for The Ehlers-Danlos Support UK.

Our 15 year old daughter Rosina was diagnosed with Hypermobile Ehlers-Danlos Syndrome (hEDS) in July 2021 after nearly 5 years of symptoms. She struggles daily with debilitating symptoms. Her sister Annabelle decided to raise some money for EDS UK to help others get a diagnosis quicker, to support much needed research and also raise awareness within the general public and the medical profession.

This year Annabelle has decided on 12K as she approaches her 12th birthday. We are hoping Rosina will be able to join Annabelle, at least for part of the walk. Last year we managed to raise £650 which we were delighted with and it would be amazing for the charity if we could do that again this year.