For the month of June, we are raising awareness and money for CDKL5. Tucker is now 6. He still has daily seizures, but he has made improvements in his fine motor and physical abilities. His cognition is also improving. He also has new challenges with impulse control, speech issues and anxiety. We have HOPE for a cure and better treatments.

The mission of the IFCR is to treat and cure CDKL5 Deficiency Disorder. We are committed to funding research that will bring about treatments and, ultimately, a cure. Please consider donating money and/or joining our team. A generous donor will match every mile you walk, run, ride or swim with a $1 up to $22,000.

Thank you for your support, love and hope for our Tucker!