Amy and Friends

Amy & Friends provide support for the health and well being of sufferers of Cockayne Syndrome and their families and carers. We provide an annual members retreat where families spend time in each other's company and meet leading doctors and researchers. We also provide a family support worker.

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Our top fundraisers

Robert Hope
$9,936.39 raised so far
Waunarlwydd Primary
$6,888.63 raised so far
Ella Barden
$4,977.67 raised so far
Joanne Ewing
$4,614.40 raised so far
Mary Ann Ricke
$2,008.01 raised so far
Jayne Hughes
$940.95 raised so far

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Messages from other supporters

I donated because my niece, Demi, has Cockayne and her father, Hans is running 14KM, the Nesselande loop in Hololoand, on Saturday May 25th.

Donation by Robert Schoonenberg 50,00 €

Hi Jayne - my party went extremely well, a good time had by all. Hope this donation helps even in a small way. Marg Simkins x

Donation by Clive Simkins £150.00 + £37.50 Gift Aid
Hi we were guests of Helen and Martin Rigg at their wedding on Saturday and they requested donations to this fantastic charity rather than gifts.

Donation by Lindsay Pierce £20.00 + £5.00 Gift Aid

Hello, we were guests at Helen & Martin's wedding yesterday who are supporters of this cause. We had the pleasure of meeting Amy yesterday briefly.

Donation by Amanda Booth £10.00 + £2.50 Gift Aid