Registered charity number 1117246
On JustGiving since Mar 2007
Ciaran Buckley Trust
The Trust raises funds in memory of Ciaran, who suffered from a genetic skin disorder called Keratitis-Ichthyosis-Deafness Syndrome (“KID syndrome”). The Trust aims to help people with similar conditions, as well as supporting research and promoting awareness about the difficulties of living with the multiple disabilities of blindness, deafness and skin disorders.