Adi's Sunshine is on a mission to raise awareness regarding the rare condition STXBP1. The condition is caused by a gene mutation which leads to learning difficulties (moderate to profound) and on most occasions, epilepsy.

Most children (such as our daughter, Adelaide) with the condition will need numerous therapies to allow them to make progress with most life skills such as Speech and Language, Physio and occupational therapy.

There are exciting research trials taking place and we want to assist in funding these trials. The overall goal is to find a cure and allow our children a better quality of life.

We thank the Eastbourne runs team for selecting us as their fundraising cause for the Eastbourne Mini mile and 5k race and thank you to everyone involved.