My sweet baby boy was born September 22nd 2016 in Northwick Park hospital, Brent. I had a c-section and then came Malikai born at 7.0 pounds. Delivery was very routine, however the first thing we noticed about Malikai is how his head was very much cocked to the left side. Over the next 4 months his head always had a slight tilt and tummy time was completely impossible. Malikai would cry in pain and looked like he was trying to lift a hundred pound head. It was his pediatrician and moorfields eye hospital at Northwick Park hospital that informed us Malikai had torticollis.

Congenital torticollis is most often due to tightness in the muscle that connects the breastbone and the collarbone to the skull. This tightness was developed because of the way Malikai was positioned in my uterus. I always felt that he favoured one side of my stomach through my pregnancy. Because Malikai had this he was really only comfortable playing on his back which caused him to have a very flat head. His pediatrician and physiotherapist advised us to help him stretch his neck with different holding positions and guiding him to look in the direction that was uncomfortable by waving or shaking his favourite toy to the other side.

It wasn’t enough and that was when we were told Malikai would need to get a cranial helmet. However NHS do not fund these helmets and I was told that I would need to go to a private healthcare provider to get a helmet for him. Cranial helmets cost £2000 and this is completely impossible for me to fund. I would truly appreciate and be thankful for anyone who could help pay for my baby boys helmet. Thankyou and God bless