My son James is nearly 4 months old and has been in hospital since birth, he was born with a rare condition called congenital hyperinsulinism and was transferred to Great Ormond street hospital at 3 days old and has been there since. Up until now I have been travelling back and forth to London nearly everyday to be with my son, and then home for the evenings to look after my 17month old daughter. We can now no longer afford to travel so much to see our son.