Story
Hello, here is a little background information of the beautiful Florence.
Flo is a happy, little ray of sunshine and is loved by eveyone who knows her. She has the most infectious laugh and is known to light up the room. However, she has a diagnosis of FOXG1 syndrome. This is a severe neurodevelopmental genetic disorder, which comes with many challenges. Flo is severely disabled, has Epilepsy, a Gastrostomy feeding tube, suffers with reflux and bowel issues and visual impairment.. Her diagnosis also means that she has a movement disorder, she has very uncontrollable movements, so needs full supoort when sitting, standing and even laying down.
We are trying to raise funds for equiptment, aids, specialist toys and anything else that will help her development and allow her to enjoy life to the fullest. She has the basic equipment provided by the NHS but this little girl deserves so much more.