Hi my name is Sam and I'm hoping to get some support for my son Riley to have an operation for SDR surgery which will stop some of the stiffness if not all of it and mean that he will not need as many operations in the future and will be able to lead more of a normal pain free life at the moment he cannot walk at all as it's to painful and hard as his legs are so stiff to straighten and really on his toes . The taller he is getting the stiffer his legs are becoming I would love for him to be able to play with his brother and friends like a little boy should be able to. To have this operation will be better for the whole family as he gets so frustrated with not being able to do things that it makes it very difficult to be able to leave the house without him having a total meltdown any donations will be greatly appreciated even if it's just a £1 every little help or running own events to help anything will help
Many thanks for reading