We are raising money for an extension and house adaptions to accommodate our disabled daughter Rosie.
Rosie was born on 9th January 2014. All seemed well. We already have two boys so to have a girl was amazing.
Nothing seemed different until a week before Rosie was 4 months old when she had her first seizure while I was out shopping.
Nothing could prepare us for what was to come after that day.
Weeks and months passed and the seizures continued and Rosies development stopped. No medication worked and the seizures continued.
We have no definate diagnosis as doctors have done all they can to find the problem. We do know her brain didn't develop fully.
Rosie is adorable and beautiful and makes us laugh but she is nearly 3 years old and has no development.
She can not see, sit,talk or walk. She still has no head control and is fed through a gastrostomy tube.
Life has changed forever and now we need to change our home to support our new life.
We will need an extension,lift, specialist bathroom and lots of equipment.
Our local authority do provide a proportion of funding but no where near enough.
We could not afford to re-mortgage or borrow the money but the adaptions are essential.
I hope you can help
Sarah and stuart