I will be running the Bridgwater half marathon on Sunday 3rd September at 11 am to raise funds and awareness of RDEB

Hard to say. Hell to live with
Sohana has lived with RDEB since she was born in 2002
She has never known a day without pain. Despite being in constant pain Sohanna has a sunny positive and humourus outlook on life and has a true fighting spirit
She dreams of a cure

Please help me raise funds to find a cure for this truly debilitating illness and help stop the pain for those who suffer from it
EVery little helps