Alice and I are doing a sponsored skydive to raise money for Sam.. Sam is a 9 year old boy with a rare genetic disorder CDKL5 causing uncontrollable seizures and global developmental delay, despite this he is a determined young boy, who loves to be outdoors and active. Whilst at school Sam loves to be in his walker, on his bike and playing football with his friends. Over the last year he has worked really hard at each of these activities and has made massive progress. Having worked with Sam at home, we would like to get him some specialised equipment to encourage him and allow him to do the things he loves to do. Also, having access to these pieces of equipment would allow Sam to become more independent and play along side his 2 sisters.