After a long year under investigation Elsie was diagnosed with the rare genetic disorder Trichothiodystrophy in January 2017. Trichothiodystrophy affects many parts of the body. It causes delayed development, intellectual disability and recurrent infections. Elsie is short sighted and is extremely sensitive to ultraviolet rays from sunlight. On the plus side Elsie is very sociable, out going and has an engaging personality. There is no cure and very limited information. We hope to bring this condition to the attention of others and maybe one day treatment will become available.

Friends at Howden Group are trying to help further by raising more donations in Walktober where we hope to collectively walk (at least) a million steps!