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On 9th -12th July 2014 , we will be walking along the canal from Liverpool to Leeds in 4 days, to raise vital funds to speed treatment to find a cure for Rett Syndrome.
Rett is the leading cause of severe disability in girls. It has similar prevalence to Cystic Fibrosis and yet not many people have heard of it. We want that to change.
Rett Syndrome devastates the lives of little girls all over the world as they are stripped of their speech, the use of their hands and their mobility sometimes in a matter of weeks or months. Rett wreaks havoc on the lives of these girls, on their families and their futures over a sustained period of ongoing medical complexities and increased disabilities. There is no cure for Rett Syndrome, yet astonishingly, the condition has been completely reversed in the lab.
Reverse Rett works to speed the time it takes to translate these research developments into treatments and cures for our daughters living with Rett Syndrome today.
Please join us, or show your support by making a donation, however small and help us drive the research into a brighter future for our children.
Day 1 Liverpool to Wigan = 35 miles
Day 2 Wigan to Burnley = 36 miles
Day 3 Burnley to Skipton = 27 miles
Day 4 Skipton to Leeds = 29.25 miles
You can read more about Rett and the potential for treatment here:http://www.reverserett.org.uk
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