About ASXL Rare Research Endowment Foundation
Bohring-Opitz, Shashi-Pena, and Bainbridge-Ropers Syndromes are ultra-rare neurodevelopmental disorders caused by the ASXL genes. Not much is known about what causes these syndromes or how to treat them. Our mission is to fund research that can improve the lives of families with ASXL syndromes.
www.arrefoundation.org
info@arrefoundation.org
ASXL Rare Research Endowment Foundation Registered charity number 823890665