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we're rare genetic charity set up by parents to raise awareness & fund research. we have been given a opportunity by our partners GOSH & SPARKS to find & fund a researcher if successful the researcher will get up to £250k. we've pledged to raise 25% of this £62.5k please help & change lives forever.
www.acrodysostosis.org
Kimberley.jade@acrodysostosis.org
Acrodysostosis Support and Research Registered charity number 1182818
"I trust you will reach your target this month, I will be praying and God Bless!"
Alexandra Suckling donated
$30.00 + $0.00 Gift Aid
"On belf of Jeremy Alboudair Galache and Nicolas Benet from their Chess Tournament at Aloha College"
Diana Perez donated
€50.00 + €0.00 Gift Aid
"Good luck Nina - you are absolutely amazing! Sending lots of love to you and all the gorgeous families in your community for this incredible journey. I know you will smash this! xxx"
Wendy donated
£50.00 + £12.50 Gift Aid
"Really hope you reach the target by April 2021 so that you can secure the rest of the funding for the vital research... my fingers and toes are crossed!"
Kathryn Samson donated
£20.00 + £5.00 Gift Aid
"I’m passing your e. mail around Texas, not to mention California... good luck.. I’m confident y’all will make it. God Bless"
Rene Lea Behrend donated
$50.00 + $0.00 Gift Aid
"For our darling Georgina xx"
F & T donated
£100.00 + £25.00 Gift Aid
Kim Brown has raised $2,568.22 so far
Kim's Acrodysostosis fundraiser
Jan Hine has raised $2,341.08 so far
I'm Jamie and Soph are doing a chilly 10K run for Jan Hine because they want to help their friend Lily.
Joshua Brindle has raised $2,235.08 so far
I'm Fundraising for Research into Acrodysostosis for Joshua Brindle because To give children a better quality of life
Diana Perez has raised $1,469.55 so far
Diana's Yoga in Jean's for Genes
Lucas spencer has raised $1,124.61 so far
I'm I am going to run 250miles by the end of the year for Lucas spencer because More awareness and research is needed
Alexander Pykett has raised $413.07 so far
We are trying to raise as much as possible for our Frankie! And many others who share the same rare gene
