About Acrodysostosis Support and Research
we're rare genetic charity set up by parents to raise awareness & fund research. we have been given a opportunity by our partners GOSH & SPARKS to find & fund a researcher if successful the researcher will get up to £250k. we've pledged to raise 25% of this £62.5k please help & change lives forever.
Acrodysostosis Support and Research Registered charity number 1182818