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We are a community of patients, medical professionals and families that have come together with a shared goal. Together we raise awareness and money for research into Acrodysostosis. Every penny you donate goes directly to making a huge difference in the lives of those living with Acrodysostosis.
www.acrodysostosis.org
info@acrodysostosis.com
Acrodysostosis Support and Research Registered charity number 1182818
"All the best Nina. Thank you for all your help! Foteini"
Foteini Tsiakalou donated
€100.00 + €0.00 Gift Aid
"Thank you for all the fantastic work you do to help kids around the world. The Anlar Family"
Anonymous donated
$250.00 + $0.00 Gift Aid
"Money raised by making scrunchies and headbands "
Lily Giles donated
£52.00 + £13.00 Gift Aid
"I trust you will reach your target this month, I will be praying and God Bless!"
Alexandra Suckling donated
$30.00 + $0.00 Gift Aid
"On belf of Jeremy Alboudair Galache and Nicolas Benet from their Chess Tournament at Aloha College"
Diana Perez donated
€50.00 + €0.00 Gift Aid
"Good luck Nina - you are absolutely amazing! Sending lots of love to you and all the gorgeous families in your community for this incredible journey. I know you will smash this! xxx"
Wendy donated
£50.00 + £12.50 Gift Aid
Kim Brown has raised $2,476.29 so far
Kim's Acrodysostosis fundraiser
Joshua Brindle has raised $2,143.27 so far
I'm Fundraising for Research into Acrodysostosis for Joshua Brindle because To give children a better quality of life
Diana Perez has raised $1,409.19 so far
Diana's Yoga in Jean's for Genes
Alexander Pykett has raised $409.66 so far
We are trying to raise as much as possible for our Frankie! And many others who share the same rare gene
Leanne Jeffries has raised $115.30 so far
Lacey's How Many Sweets
Jo Vale has raised $74.61 so far
Molly moos fundraiser
