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Acrodysostosis Support and Research

We fund vital research for families to give opportunity for a better life.

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About Acrodysostosis Support and Research

we're rare genetic charity set up by parents to raise awareness & fund research. we have been given a opportunity by our partners GOSH & SPARKS to find & fund a researcher if successful the researcher will get up to £250k. we've pledged to raise 25% of this £62.5k please help & change lives forever.

www.acrodysostosis.org

Kimberley.jade@acrodysostosis.org

Acrodysostosis Support and Research Registered charity number 1182818

Donation message

"On belf of Jeremy Alboudair Galache and Nicolas Benet from their Chess Tournament at Aloha College"

Diana Perez donated

€50.00 + €0.00 Gift Aid

Donation message

"Good luck Nina - you are absolutely amazing! Sending lots of love to you and all the gorgeous families in your community for this incredible journey. I know you will smash this! xxx"

Wendy donated

£50.00 + £12.50 Gift Aid

Donation message

"Really hope you reach the target by April 2021 so that you can secure the rest of the funding for the vital research... my fingers and toes are crossed!"

Kathryn Samson donated

£20.00 + £5.00 Gift Aid

Donation message

"I’m passing your e. mail around Texas, not to mention California... good luck.. I’m confident y’all will make it. God Bless"

Rene Lea Behrend donated

$50.00 + $0.00 Gift Aid

Donation message

"For our darling Georgina xx"

F & T donated

£100.00 + £25.00 Gift Aid

Donation message

"Good luck Everyone . X"

Sharon hoare donated

Kim Brown has raised $2,488.41 so far

Kim's Acrodysostosis fundraiser

23 Supporters

Jan Hine has raised $2,268.33 so far

I'm Jamie and Soph are doing a chilly 10K run for Jan Hine because they want to help their friend Lily.

45 Supporters

Joshua Brindle has raised $2,165.63 so far

I'm Fundraising for Research into Acrodysostosis for Joshua Brindle because To give children a better quality of life

23 Supporters

Diana Perez has raised $1,423.88 so far

Diana's Yoga in Jean's for Genes

22 Supporters

Lucas spencer has raised $1,089.67 so far

I'm I am going to run 250miles by the end of the year for Lucas spencer because More awareness and research is needed

33 Supporters

Alexander Pykett has raised $400.23 so far

We are trying to raise as much as possible for our Frankie! And many others who share the same rare gene

9 Supporters