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Alstrom Syndrome UK

We offer support, information and hope to families & individuals who are affected

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About Alstrom Syndrome UK

We support and empower families who are affected by one of the rarest diseases in the world, Alstrom Syndrome. This complex condition affects every organ in the body and can lead to progressive blindness and deafness. Providing information, research opportunities, medical clinics & fun activities.

www.alstrom.org.uk

info@alstrom.org.uk

Alstrom Syndrome UK Registered charity number 1071196

Donation message

"In honour of Amber's passion, creativity, resilience and determination. She was a force of nature and will be deeply missed. **wolf howls** ~ From Cat, Robin, Ken and all at Pelgrane Press"

Pelgrane Press donated

£100.00 + £25.00 Gift Aid

Donation message

"For Amber Rogers - she was a force of nature!"

Good Steve donated

£20.00 + £5.00 Gift Aid

Donation message

"In memory of Amber"

Joanna, Paddy, Alice, Emma & Lucy donated

£50.00 + £12.50 Gift Aid

Donation message

"An extraordinary soul - a privilege to have known Amber since primary school and watched her journey to young woman. Gutsy and funny and intensely compassionate - a lesson to all of us on how to live."

Amber donated

£20.00 + £5.00 Gift Aid

Donation message

"It has been a great honour to have known you and to have seen how your amazing humour and good sense has brought so many smiles to so many. You will be remembered for many many years."

Amber donated

Donation message

"Remembering dear Amber, her courage and her love."

Elaine donated

£40.00 + £10.00 Gift Aid