Lace-up your shoelaces because we are on a Journey to reach a Million Miles!

For 35 years the Foundation strives to find answers, improve medical treatments and forge opportunities in research to combat this rare disease that affects only 2% of the population.

It is the Foundation's hope through the Million Miles Walk event to:

Raise funding for research, Team-building for our existing community of members, Raise awareness of this rare disease to the general public, Offer a healthy exercise opportunity for a cause, Grow our volunteer and donor potential.

The SWF Million Miles Event begins April 1, 2022, and ends July 19, 2022, with a special walk at Grapevine, Texas's 2022 International Family Conference. SWF will announce special Mile Marker incentives during this event.

Create a Team, register as part of an existing team, or walk as an individual. It's all about the journey to a million miles.

Planning a fundraiser might sound intimidating but you can keep it super simple or goal