Marissa's World began 13 years ago on March 24.   Marissa has struggled at times with all pieces Sturge Weber Syndrome.   

Today Marissa's determination is what I admire most.   We have added technology to her world and most recently a three wheeler bike to keep her safe.   Marissa's biggest goal is to be able to ride her bike on the last day of 8th grade with her peers at school.   All eighth graders take a ride together to school on the last day.   This is a tradition that Marissa would like to be a part of successfully.  May is  our month of awareness and Marissa has chosen this time to be  the best time to start.   Marissa's World will take part in the journey below:

Lace-up your shoelaces because we are on a Journey to reach a Million Miles!For 35 years the Foundation strives to find answers, improve medical treatments and forge opportunities in research to combat this rare disease that affects only 2% of the population.It is the Foundation's hope through the Million Miles Walk event to:Raise funding for research, Team-building for our existing community of members, Raise awareness of this rare disease to the general public, Offer a healthy exercise opportunity for a cause, Grow our volunteer and donor potential.The SWF Million Miles Event begins April 1, 2022, and ends July 19, 2022, with a special walk at Grapevine, Texas's 2022 International Family Conference. SWF will announce special Mile Marker incentives during this event.Create a Team, register as part of an existing team, or walk as an individual. It's all about the journey to a million miles.Planning a fundraiser might sound intimidating but you can keep it super simple or go

Now is the time to sponsor and support Marissa to once again achieve her next goal and if you are able please support our Foundation that is near and dear to us!   

Thank you for your time.  The Terrells.