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We provide support for people affected by CCHS by networking and advocating for families, providing CCHS education and supporting CCHS research.
CCHS Support Group Registered charity number HMRC Registered
"For cchs uk wrist bands Abie lawlor xxx"
Irene Long donated
€100.00 + €0.00 Gift Aid
"For little Saul xxx 💙"
Kev & Lou Hawkes donated
£20.00 + £5.00 Gift Aid
"For purchase of 8x pin badges & 4x wristbands plus p&p. Thank you x"
Angela John donated
£21.60 + £0.00 Gift Aid
"Lots of Love xxx"
Karen Brindley-Gill donated
£165.00 + £41.25 Gift Aid
"This donation is from my baby girl Tiger-Lily's 0-3 clothes I haven't been able to put her in ... sold to a new mum on Facebook.
Together we can find new research.."
Vicky Sykes donated
£30.00 + £7.50 Gift Aid
"Terrific effort, Ryan. You're an inspirational role model for the younger kids with CCHS."
Alan Carnell donated
£50.00 + £12.50 Gift Aid
Sarah Page has raised $4,043.94 so far
I'm We are going to do the 106km IoW Challenge for Sarah Page because little Charlie has this very rare condition.
Victoria Sykes has raised $1,855.91 so far
I'm We are holding a raffle for Tiger-Lilys party. for Victoria Sykes because we need more awareness of the condition cchs
Gail Devenny has raised $1,609.88 so far
I'm I for Gail Devenny because
April Towriess has raised $668.25 so far
I'm Raising awareness of CCHS and Florence's story for April Towriess because everybody needs hope!
Holly Coe has raised $607.50 so far
I'm Raising money in honour of handsome Saul Hinder for Holly Coe because Saul was supported by this group whilst with us
Stephanie Burchell has raised $182.25 so far
I'm I am losing weight for my children for Stephanie Burchell because I want to be a better and healthier mum to them!