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We provide support for people affected by CCHS by networking and advocating for families, providing CCHS education and supporting CCHS research.
CCHS Support Group Registered charity number HMRC Registered
"I myself have Ondines Curse a.k.a CCHS. I am HOPING that though no cure will be found in MY lifetime, that the funding including that from myself CAN help future individuals who MAY have the condition"
David Taylor donated
£50.00 + £0.00 Gift Aid
"For cchs uk wrist bands Abie lawlor xxx"
Irene Long donated
€100.00 + €0.00 Gift Aid
"For little Saul xxx 💙"
Kev & Lou Hawkes donated
£20.00 + £5.00 Gift Aid
"For purchase of 8x pin badges & 4x wristbands plus p&p. Thank you x"
Angela John donated
£21.60 + £0.00 Gift Aid
"Lots of Love xxx"
Karen Brindley-Gill donated
£165.00 + £41.25 Gift Aid
"This donation is from my baby girl Tiger-Lily's 0-3 clothes I haven't been able to put her in ... sold to a new mum on Facebook.
Together we can find new research.."
Vicky Sykes donated
£30.00 + £7.50 Gift Aid
Victoria Sykes has raised $2,006.96 so far
I'm We are holding a raffle for Tiger-Lilys party. for Victoria Sykes because we need more awareness of the condition cchs
Gail Devenny has raised $1,740.89 so far
I'm I for Gail Devenny because
April Towriess has raised $722.64 so far
I'm Raising awareness of CCHS and Florence's story for April Towriess because everybody needs hope!
Holly Coe has raised $656.94 so far
I'm Raising money in honour of handsome Saul Hinder for Holly Coe because Saul was supported by this group whilst with us
Ben McCarrick has raised $610.96 so far
Stephanie Burchell has raised $197.08 so far
I'm I am losing weight for my children for Stephanie Burchell because I want to be a better and healthier mum to them!