The Schinzel-Giedion Syndrome Foundation

We raise awareness and support research to improve the lives of children with SGS

Support us by donating or fundraising today - every contribution helps make a difference!

Charity Registration No. 1186327

contact@sgsfoundation.org

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About us

Our mission is to provide support to families caring for a child with Schinzel-Giedion Syndrome (SGS), to raise awareness of SGS and to facilitate and support vital medical research that will improve the quality and length of life of children living with this life-limiting, rare genetic condition.

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