Weʼre raising £500 to help buy a wheelchair for Jess, so she can go to university, by (stupidly) cycling 100miles on 2 tandem bikes ...wish us luck!
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
By cycling 100 miles on 2 tandem bikes, the 4 of us are raising this £500 to boost a separate fundraising campaign for Jess (Lucy's niece) to enable her to buy a wheelchair smart drive so she can have the independence to go to university and achieve her dreams.
Jess is 17 years old and was diagnosed with Ehlers Danlos Syndrome (EDS) in 2015. It has been heart breaking to watch Jess’s mobility and health progressively deteriorate ever since.
EDS is a complex connective tissue disorder that effects many systems in the body, which has left Jess with agonising daily dislocations of her knees, shoulders and hip joints, long term chronic pain, chronic fatigue, dizziness and fainting, allergies, digestive and bladder problems and has had a knock-on effect on her self-esteem.
Also with new diagnosis of Acetabular Retroversion (a form of hip dysplasia) Coxa Profunda, and other symptoms that come with these conditions, means Jess will need to undergo complex hip surgery this year with a recovery period of up to 1 year.
Jess is ambitious and has had a dream since she was 8 years old to go to university and become a doctor. EDS has been life changing for Jess, who has had to re-evaluate her future aspirations and expectations. Now realising her mobility may be a barrier to this dream, she is looking to study Biomedicine and work within the research field. Life at university depends on Jess having the right chair to enable her to study and live independently.
Please see the following link for the main just giving page for further details:
Please support us in this crazy tandem cycle in our quest to raise another £500!
Share this story
Updates appear here
Lucy Knight started crowdfunding