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Tomas Stoneham raised £1,312.5 from 66 supporters

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Closed 03/05/2019

0%
£1,312
raised of £1,000 target by 66 supporters

    Weʼve raised £1,312 to help Chloe overcome Acute Flaccid Myelitis (AFM)

    Funded on Friday, 3rd May 2019

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    Me and my partner, Amy are running the Canterbury 10 mile road race on 27th January 2019 to raise money for Amy's three-year-old cousin Chloe. I have not run in over two years and get out of breath just walking up the stairs at home!! I have just 23 days to train! Why are we doing this you ask? Read Chloe's story below:

    Chloe (aged 3) attended her first ballet lesson on Saturday 15 September, but only a couple of days later she suddenly lost complete movement of her left arm and hand. Chloe's left arm is now paralysed along with her hand.

    She has Acute Flaccid Myelitis, a extremely rare, but serious condition with no known cause. However it is thought Chloe contracted a virus which caused inflammation on her spinal cord and has resulted in damage to the nerves that control her left arm and hand. (C5 and C6 of spinal cord). She also has weakness in one leg and her core, however with rehabilitation these are improving.

    We are raising money to help rehabilitate with the hope that she regains strength and movement in her arm again and if not enable her to continue to use her arm with the support of a mobile arm aid. This specialised equipment will help her regain her muscle mass which has wasted and caused her shoulder to sublux.

    She requires specialist equipment including a full stimulation body suit to help electrically stimulate the muscles in her arm as well as her core (which has also been affected).

    Mobile Arm Aid (pictured) - £4,000 (estimate)

    Full Electronic Stimulation Suit (Mollii) - £4100 plus VAT

    Chloe attends hydrotherapy sessions in Bristol Children's Hospital which hugely benefits her recovery as this is where she has shown most movement in parts of her arm (slight elbow to wrist movement). However once we are discharged from Bristol, the community can only offer one session a week. We therefore would like to also pay for private sessions. Money not used for specialist equipment will fund extra physiotherapy and occupational health sessions.

    As we research there might be more specialist equipment we need. Also we may look into any hand treatments if movement hasn't returned within 18 months.

    Find out more: https://www.plymouthherald.co.uk/news/plymouth-girl-paralysed-rare-illness-2385873?utm_source=facebook.com&utm_medium=social&utm_campaign=sharebar&fbclid=IwAR3JMbodlodTO5S-8TQOab1Hetr--ZYcOjisr-5TFk9bSjP5HnHx87iHroE

    https://www.dailymail.co.uk/health/article-6512033/Warning-issued-mystery-rise-rare-polio-like-illness-England.html

    Updates

    2

    • Tomas Stoneham10 months ago
      Tomas Stoneham

      Tomas Stoneham

      10 months ago

      So we did it! Tomas completed it in 2:12:30 and Amy did it in 1:56:31. It was very cold and extremely windy which made it even harder but doing it for such an important cause made it all worthwhile! Thank you so much to everyone who has supported us and donated. Chloe and her parents are so grateful. You can still donate if you would like to. Every little helps! Here's a picture of us afterwards with our medals:

      Update from the Page owner

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    • Tomas Stoneham1 year ago
      Tomas Stoneham

      Tomas Stoneham

      1 year ago

      Tomas has just done his first training run. A start 4.5k in 34 minutes isn't bad at all!

      Update from the Page owner

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    1 year ago

    Tomas Stoneham started crowdfunding

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    Page last updated on: 2/4/2019 11.40

    Supporters

    66

    • Clive O'Riordan

      Clive O'Riordan

      Feb 4, 2019

      Good luck with the run and all the best for Chloe.

      £20.00

    • Belinda Gately

      Belinda Gately

      Feb 4, 2019

      £10.00

    • Kate Coles

      Kate Coles

      Feb 3, 2019

      Massive well done to you, Amy and Tom! 🙂

      £5.00

    • Anonymous

      Anonymous

      Jan 31, 2019

      Well done to you both

      £30.00

    • Sara

      Sara

      Jan 29, 2019

      Congratulations Tom and Amy! X

      £20.00

    • Mark Shrimpton

      Mark Shrimpton

      Jan 28, 2019

      £20.00

    • Ian Haisell

      Ian Haisell

      Jan 28, 2019

      £20.00

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    Tomas Stoneham

    Tomas Stoneham

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