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£1,020raised of £1,000 target by 45 supporters

Weʼre raising £1,000 to help Chloe overcome Acute Flaccid Myelitis (AFM)

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Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

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Story

Me and my partner, Amy are running the Canterbury 10 mile road race on 27th January 2019 to raise money for Amy's three-year-old cousin Chloe. I have not run in over two years and get out of breath just walking up the stairs at home!! I have just 23 days to train! Why are we doing this you ask? Read Chloe's story below:

Chloe (aged 3) attended her first ballet lesson on Saturday 15 September, but only a couple of days later she suddenly lost complete movement of her left arm and hand. Chloe's left arm is now paralysed along with her hand.

She has Acute Flaccid Myelitis, a extremely rare, but serious condition with no known cause. However it is thought Chloe contracted a virus which caused inflammation on her spinal cord and has resulted in damage to the nerves that control her left arm and hand. (C5 and C6 of spinal cord). She also has weakness in one leg and her core, however with rehabilitation these are improving.

We are raising money to help rehabilitate with the hope that she regains strength and movement in her arm again and if not enable her to continue to use her arm with the support of a mobile arm aid. This specialised equipment will help her regain her muscle mass which has wasted and caused her shoulder to sublux.

She requires specialist equipment including a full stimulation body suit to help electrically stimulate the muscles in her arm as well as her core (which has also been affected).

Mobile Arm Aid (pictured) - £4,000 (estimate)

Full Electronic Stimulation Suit (Mollii) - £4100 plus VAT

Chloe attends hydrotherapy sessions in Bristol Children's Hospital which hugely benefits her recovery as this is where she has shown most movement in parts of her arm (slight elbow to wrist movement). However once we are discharged from Bristol, the community can only offer one session a week. We therefore would like to also pay for private sessions. Money not used for specialist equipment will fund extra physiotherapy and occupational health sessions.

As we research there might be more specialist equipment we need. Also we may look into any hand treatments if movement hasn't returned within 18 months.

Find out more: https://www.plymouthherald.co.uk/news/plymouth-girl-paralysed-rare-illness-2385873?utm_source=facebook.com&utm_medium=social&utm_campaign=sharebar&fbclid=IwAR3JMbodlodTO5S-8TQOab1Hetr--ZYcOjisr-5TFk9bSjP5HnHx87iHroE

https://www.dailymail.co.uk/health/article-6512033/Warning-issued-mystery-rise-rare-polio-like-illness-England.html

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Updates

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  • Tomas Stoneham15 days ago
    Tomas Stoneham

    Tomas Stoneham

    15 days ago

    Tomas has just done his first training run. A start 4.5k in 34 minutes isn't bad at all!

    Update from the Page owner

    Share this update to help us raise more

18 days ago

Tomas Stoneham started crowdfunding

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Page last updated on: 1/20/2019 12.11

Supporters

45

  • Mark stoneham

    Mark stoneham

    Jan 20, 2019

    Good luck 😉

    £50.00

  • Dawn Brandon

    Dawn Brandon

    Jan 18, 2019

    Good luck Tom, hope all goes well.Keep fighting Chloe

    £50.00

  • Sarah Bauwise

    Sarah Bauwise

    Jan 16, 2019

    Good luck Tom, you can do it, Chloe is your inspiration

  • Stewart Melvin

    Stewart Melvin

    Jan 13, 2019

    I will be there supporting you Amy and your cause at the Canterbury 10 miler 👍🏃‍♂️

    £20.00

  • Gracy Bailey

    Gracy Bailey

    Jan 11, 2019

    Good luck!

    £10.00

  • Jayne Pearce

    Jayne Pearce

    Jan 11, 2019

    Good luck buddy!!

    £25.00

  • Jenn

    Jenn

    Jan 9, 2019

    You got this Tom!! All the best to you and your partner, and of course Chloe's recovery.

    £15.00

Tomas Stoneham

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Tomas Stoneham

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