Jack is planning to do 1 million steps in July to help raise money to get Freddie an electric wheelchair.

Here is Freddie‘s story.

On the 28th of May 2019, Freddie was diagnosed with SMA type 2 (Spinal Muscular Atrophy) at just 12 months old.

SMA is a rare genetically inherited neuromuscular condition. It causes progressive muscle weakness and loss of movement due to muscle wasting (atrophy).

This devastating disease that robs individuals of their independence.

There is currently no cure for SMA, however 13 days prior to Freddies diagnosis a groundbreaking new treatment was approved for use in England! (Nusinersen - SPINRAZA).

Evidence suggests that this treatment stops disease progression and allows individuals to regain previous lost muscle power if dosed early!

Freddie started this life changing treatment on the 7th October 2019. This is still not a cure for SMA. Freddie will always live with the disease, but we now have hope for the future.

Freddie is such a clever little boy, he loves tractors, cars, diggers,rockets and dinosaurs. He loves to go swimming and to nursery were he can play with his friends.

Our aim is to give Freddie inclusion and independence in life. For this we will make sure Freddie gets the best treatment, physiotherapy, equipment and home modifications.

Thank you for helping x