I've raised £5000 to fund essential equipment and care for Isabella Villena who suffers a rare and life limiting illness known as Aicardi Syndrome
Organised by Alasdair McWhirter
I am raising money for my friends daughter Isabella Villena who suffers a rare and life limiting illness known as Aicardi Syndrome.
In July 2019 I will be running 500 miles for Isabella.
Isabella is blind, suffers seizures throughout the day, and requires 24 hour care. This fund raising will provide essential care and equipment that Isabella requires.
Like any family they want to provide the best for their daughter and this money will help buy medical equipment, clothes and sensory equipment to make Isabella's life more comfortable.