Weʼve raised £290 to I am fundraising for a little boy - Aash-Jai Evans & the Aash-Jai Quality of Life fund to raise vital funds to give him a quality of life.
- Disability support
- Time left
- Funded on Wednesday, 11th January 2017
Crowdfunding is the new way to raise money for a personal cause on JustGiving.
We set up our first page which exceed all expectations and reached the target in days.
So now we have set up this new page to continue to help & support
Aash is 5 years old and has the most infectious smile. At the age of 15 months Aash was diagnosed with diplegic cerebral palsy which affects the lower half of the body. He is unable to sit and stand un-aided, or walk without a K walker. He has to use a standing frame to standup, but can only tolerate it for short periods of time due to pain. Aash high muscle tone & walks on his tip toes and has to wear day & night time splints with gaters at night. Aash is constantly in pain and is on medication day & night.
Aash has just received major lifesaving surgery called SDR (selective dorsal rhizotomy), this op was originally meant to be funding by NHS England, but was withdrawn after referral. Fundraising has continued with a huge target of £40,000 to reach for both the operation and aftercare. The SDR operation itself is major surgery operating on the spine, cutting the nerve ending causing the spasticity and pain. This operation will mainly relieve pain & reduce spasticity, which will be life changing surgery for Aash. It will help him become more independent, will help him tolerate longer periods of standing on his frame, will help him walk with his K walker with his heels down, but most of all pain free.
The support and generosity from everyone has been phenominal, which has enable the family to pay, £21,000 for the operation at Alder Hey, the funds we now need to help with is the aftercare of £20,000, which will enable Aash to have physio, equipment, and anything he needs to enable him to have the quality of life he needs. The physio will take from 12 to 24 months depending on how strong Aash is, with further operations, required for possible knee operation, tendon lengthening in the future.
Thank you for taking the time to read Aash’s story & we do hope you will help and support.
Derren Davies started crowdfunding
Leave a message of support
P Nicola J Huxley
Dec 7, 2016
Cash sponsorship money banked and paid on behalf of Andy M, Shirley R, John H, Phil & Hayley H, Ethan J, Jade W & McDowells. A huge thanks to all who have sponsored both Darren & Darren.
Nov 23, 2016
Well done you mad pair. ;-) Glad you got down safely.
Charlie (Nigel Chadwick)
Oct 31, 2016
Well done Darren
About the fundraiser
THE BIG BIG JUMP On Friday 16th September, Derren Davies & Darren Huxley - Tilstock Skydive Centre at 12noon, We shall be partaking in a jump out of a plane (Maddness I hear you say). All for the Aash-Jai Quality of Life Fund - Please read his story x
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