Story
Dearest Family and Friends,
In honour of our Glorious Little Sunshine AREV turning 4, we would love to invite you to take part &/or sponsor our 1st Annual SUNSHINE WALK!
We will be doing Laps in Mill Hill Park, at 12pm on Monday the 6th May 2024 to raise awareness and funds for the charity The "Yellow Brick Road Project" and Dr. Bain herself to help with further research and to support families and their children with this very rare genetic condition Bain HNRNPH2
There are roughly 180 recorded cases (to date) of this rare Disorder Globally !!
https://yellowbrickroadproject.org/
Please do send this to anyone you think can help and please let us know if you are able to come and support us.
This is for our Angel Arev Aïda Aurora and for all her International Cousins