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Meg Pirie raised £1,400 from 33 supporters.

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Closed 03/03/2017

28%
£1,400raised of £5,000 target by 33 supporters

    Weʼve raised £1,400 to get treatment for Bethany from an environmental medicine specialist after being diagnosed with GPA

    Location
    North Wales, UK
    Time left
    Funded on Friday, 3rd March 2017

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    Crowdfunding is the new way to raise money for a personal cause on JustGiving.

    Story

    Bethany is our bubbly, funny, kind and thoughtful youngest daughter. After many months of suffering with severe breathing difficulties which was managed with drugs to keep her airway open, she was finally diagnosed in March 2016 with a rare disease – Granulomatosis with Polyangiitis Vasculitus. Soon after she was accepted on a trial programme for a new treatment which could possibly put the disease into remission at Alder Hey hospital.

    GPA is a systemic, inflammatory, autoimmune disease which attacks certain organs such as the sinuses, throat, lungs and kidneys, inevitably shutting them down. Without treatment, the prognosis is poor and life limiting. The disease has also caused other problems such as enlarged thyroid.

    Beth was out of school for a year and even now is regularly in hospital or off sick. The diagnosis was devastating for a young 14 year old girl who had to listen to the doctors while they explained what the disease was doing and could do to her body. We were told that there was no drug/cure available on the NHS.

    There is now an increasing amount of research to suggest that environmental factors play a big part in contributing to GPA. We are therefore also teaming the medical trial with a privately-owned medical centre specialising in environmental medicine, which includes identifying the cause such as viruses and other pollutants which may have contributed.

    Dr Monro is a specialist in her field and has focussed on this area for much of her career successfully treating a wide variety of autoimmune diseases, using certified laboratory tests worldwide to detect and address underlying viruses, infections and nutritional deficiencies, and by using low-dose immunotherapy as a foundation for rebuilding healthy immune systems.

    Our goal is to raise enough money to be able to get our gorgeous girl into remission so that she can do all the things that teenagers want to do.

    Updates

    2

    • Meg Pirie

      Meg Pirie

      6 months ago

      Meg Pirie

      We've been overwhelmed by all the support from all our friends, family and the remarkable kindness of strangers. Thank you all so much for your donations xxxx

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    • Meg Pirie

      Meg Pirie

      6 months ago

      Meg Pirie

      So our page went live today. Wanting to thank everyone for their support before we've even begun. Any questions about the treatment please just ask. Thanks

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    6 months ago

    Meg Pirie started crowdfunding

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    Supporters

    33

    • Karen hodgson

      Karen hodgson

      Jan 10, 2017

      Best of luck with your treatment Beth x

      £20.00

    • Anonymous

      Anonymous

      Jan 9, 2017

      Come on Bethany praying that all continues to improve

    • Anonymous

      Anonymous

      Dec 29, 2016

      £500.00

    • Liam Gower

      Liam Gower

      Dec 18, 2016

      £50.00

    • Alan snuggs

      Alan snuggs

      Dec 15, 2016

      £30.00

    • SUSAN QUINTON

      SUSAN QUINTON

      Dec 14, 2016

      We're always praying for absolute healing. LOve & Blessings from Paul & Sue xxxx

      £20.00

    • Dymphna Regan

      Dymphna Regan

      Dec 14, 2016

    About the fundraiser
    Meg Pirie

    Meg Pirie

    North Wales, UK

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