Our precious little man, James, suffers from a rare genetic condition called MECP2 Duplication Syndrome. He is our world and a total joy but as you can imagine, parenting and caring for someone with such high needs is immensely challenging, exhausting and often isolating.

We have spent over a decade fighting for the basic things both he and our family need to support him fully. He recently regressed and has now stopped walking completely which has been devastating to us all. James loves adventures so we take him out to local parks and nature reserves most days but his outgrown pushchair is broken (we have fixed it previously but it is now beyond repair). For some time, he has needed a wheelchair but despite fight after fight, we cannot get this for him and are unable to pay the £2500 plus required.

Any contribution towards this would be beyond appreciated so we can get our beloved son back out and about enjoying the world around him. Thank you so much in advance for reading/sharing/contributing etc. Love from Bex, James, Jaiden and little man James xxxx