Weʼve raised £175 to Help Raise a Positive Future by way of a Lightweight Power-Assisted Wheelchair, Other Support, Including OT Assessments and Other Equipment.
- Near Trowbridge, Wiltshire. UK
- Disability support
- Time left
- Funded on Thursday, 24th November 2016
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
Blythe is a fantastic 11 year old girl, who until earlier this year, was very active (netball, running, basketball, crafts, singing, etc.) But after a knee injury, caused simply by straightening her leg, whilst laid in bed one morning, she has suffered extreme pain, more than anyone may ever imagine.
Blythe has been diagnosed with a chronic neurological pain disorder - Complex Regional Pain Syndrome (CRPS). This condition causes extreme pain 24hrs a day, allodynia, amongst other problems - There is no cure.
Blythe has also been told she has Joint Hypermobility Syndrome, which is hereditary connective tissue disorder.
Blythe's pain from CRPS, initially started in her right knee, but in the past couple of months, the symptoms have spread to the rest of her body.
Blythe is intolerant to even the slightest feather-like touch. Certain clothes, however soft, feel like the roughest sandpaper on her skin. Every bump or knock, however slight, feels excruciating, making travelling in a wheelchair or by car extremely difficult.
Within 3 months Blythe has gone from using crutches to needing a wheelchair!
Along with the audio and visual disturbances, fatigue and depression, these conditions are slowly destroying my bubbly, fun, life loving, little girl!
Blythe has not been able to go to school because of these conditions, but services have not been put in place to help her! With the money raised, it will allow that to change!
The money raised will get a wheelchair with wheel drive system & suspension, to reduce the pain Blythe feels whilst moving and to aid her when fatigued.
Occupational Therapy Assessments, both at home and school. Along with any physio and other aids needed.
This will ALL help her be independent and to access education, be with her friends and enjoy life again.
Your help by donating is gratefully appreciate, whatever the amount.
Updates appear here
Emma Clay started crowdfunding
Leave a message of support
Sep 10, 2016
Sep 8, 2016
I really hope you reach the target em xx
Jackie dowson Munro
Sep 6, 2016
Sep 4, 2016
Sep 2, 2016
Couldn't give nothing x
Sep 2, 2016
Wish there was more understanding about this horrible dibilitating illness. Hope B manages to get her chair and her life back as soon as possible.
Aug 25, 2016
About the fundraiser
Near Trowbridge, Wiltshire. UK
I am just a single mum, an Army Veteran, who has got increasingly frustrated with the lack of services, to help my daughter fight, manage and accept her debilitaing conditions, since the beginning of this year.
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