Bobbie and Remy our 2 year old twins were born with a deletion on chromosome 4q. This was undetected during pregnancy. This genetic condition is extremely rare. There are no other recorded cases of Bobbie and Remy’s exact deletion.

Both Bobbie and Remy were born with upper limb differences. They are both missing the ulna bone in the left arm. Remy has a contracted left elbow which means that he cannot straighten his left arm. He has a single digit on the left arm. Remy was also born with oligodactyly (fused digits on the right hand). He underwent surgery in November 2023 to seperate his thumb from his digits and to create a web space in between them to allow him to grasp objects.

Bobbie was born with syndactyly on the left hand, she is missing part of her hand and the last three digits.

Both Bobbie and Remy have global development delay. Neither Bobbie nor Remy are walking yet. Remy has only just started to bottom shuffle but cannot sit himself up when lying down.

As parents we are constantly researching and exploring therapies and equipment that we could use to help progress Bobbie and Remy’s physical and mental development.

Despite the shock and surprise of entering the world with these differences Bobbie and Remy have brought an unimaginable love into our lives and we will forever strive to improve their future and give them the most fulfilled life that they deserve at every opportunity. They bring utter joy into everyone’s life who have crossed their path.

Funds donated from this page will go towards Bobbie and Remy’s private therapies starting with Conductive Life.

We sincerely thank you for visiting our page and your support.

Much love Nadine and Paul xx