44%
£1,910raised of £4,300 target by 86 supporters

Weʼre raising £4,300 to Help Brady to get a power assist wheelchair

Location
Moira, United Kingdom
Time left
6 days to go

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Story

Brady is currently 10 years old and at 18 months he started a roller coaster journey that he is still battling and will continue to battle for the rest of his life.
Originally thought to have had cerebral palsy it was clear a year into his diagnosis that his condition was progressing.
After 50 weeks of fighting we managed to get him an mri scan which revealed he had an abnormal vein system within his spinal column. Brady had what was termed as a perimedullary AV fistula in the mid lumber of his spine. The rarity of the condition required the help of a specialist surgeon to be flown in to Belfast to diagnose Brady. With only one other case reported in the last 25 years we knew this was going to be a long road.
Once assessed it was uncertain as to what could be done to help Brady and at that moment he was the highest risk child in the Royal Victoria hospital.
It was decided that there would be only one procedure to postpone the aggressiveness of the condition and that as parents we would be faced with one of the most difficult decisions we would ever have to make, the surgery would keep him alive but he would spend the rest of his life in a wheelchair due to the he damage the procedure would cause.
Nothing would ever prepare us for having to explain to a 4 year old he would never walk again.
These things make us stronger and 6 years on Brady still lives with the danger of his condition being in control of his life but we never want him to want for anything and this year he saw a power assist attachment for his wheelchair at a mobility show. It will power his chair for up to 12 miles and would give him the freedom of being able to go for walks as a family and not have to worry about long journeys tiring him out. He wants to be able to keep up with his younger brother on his bike and not have to ask people to push him.
The unit will cost us nearly £9000 and we are trying to raise at least £4300 to help towards the cost of improving his everyday life.
THANKS


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Updates

4

  • David Chambers

    David Chambers

    2 months ago

    David Chambers

    Brady got to test drive the drive unit we are fundraising for, an absolute life changer for him, thank you for all the help and support so far in achieving so much already

    Share this update to help us raise more

  • David Chambers

    David Chambers

    2 months ago

    David Chambers

    Today's the big day at Musgrave spinal unit, early start and just settled in, as a parent it never gets any easier to put your child through these things but you have to look past it and think about the long term positives. I've been through this with brady so more times than I can remember and every time it gets a little bit harder and hurts a little bit more but these things make us stronger and that big smile could lift any sadness. Thank you so much for all the support so far and those who continue to support us Love David, Louise, brady

    Update from the Page owner

    Tagged:

    • Louise Chambers

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  • David Chambers

    David Chambers

    2 months ago

    David Chambers

    Brady has his first pre-op consultation today at the royal children's hospital and would like to say a big thank you to everyone who has donated so far. Both Louise and I would like to extend our gratitude to everyone too as we are just so taken by the amount of generosity and support people have shown for Brady. The first week has been unbelievable and we have raised over £700 so far, thank you so much to everyone who has helped. Surgery is next Thursday and we will keep everyone updated Love David, Louise and Brady

    Update from the Page owner

    Tagged:

    • Louise Chambers

    Share this update to help us raise more

3 months ago

David Chambers started crowdfunding

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Supporters

86

  • Brian Walker

    Brian Walker

    Nov 22, 2016

    Lots of love to Brady as he gets bigger and bigger and wiser and wiser! From Uncle Brian.

    £100.00

  • Ann Walker

    Ann Walker

    Nov 14, 2016

    Good luck Brady! Love Auntie Ann x

    £100.00

  • Michele Kilfeather-Hughes

    Michele Kilfeather-Hughes

    Nov 6, 2016

    Good luck with the fundraising xx Michele & Martin (friends of Rachael's)

    £100.00

David Chambers

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About the fundraiser
David Chambers

David Chambers

Moira, United Kingdom

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