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Sharon raised £6,490 from 156 supporters

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Closed 15/07/2017

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£6,490raised of £24,000 target by 156 supporters

    Weʼve raised £6,490 to Build a Pallative Care Suite for Shay Murray

    London, United Kingdom
    Funded on Saturday, 15th July 2017

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    Shay in April 2008 was diagnosed with Pearson's Syndrome a Mitochondrial disease with no cure. Pearson syndrome is very rare, less than a hundred cases have been reported worldwide. Not many people know about Mitochondrial Disease, there are few supportive treatments relieving symptoms but at this present time there is no cure.
    Our mitochondrial cells are like power stations in our bodies, supplying the energy every cell needs to function. These cells make up our organs and tissues within our bodies. Shay’s cells do not have the energy to make his body organs work properly for example, if a car does not have enough battery power, the car will not start or suddenly stop, no matter how new that car is.
    Shay is nearly 10 years old and this disease is progressing with devastating effects on his health. His one love is his Xbox and he is now having trouble holding on to things along with vision loss, hearing loss and overall muscular weakness. This is heart breaking to see and we want him to have the comfort and quality of life before it is too late.
    We are raising funds towards a palliative care suite fully equipped to make Shay more comfortable, safe and have the independence he needs in his everyday life. Every single penny helps towards our goal for Shay and we would like to thank all of our supporters who have previously donated, thank you.

    Updates

    1

    • Sharon3 years ago
      Sharon

      Sharon

      3 years ago

      Each day we are astounded at the generosity of everyone. When we first started this campaign it seemed like our original target of £30000 was always out of reach. We are really pleased to announce with our donors online and offline fundraising we are now at the £14000 mark! I would like to thank everyone who continues to donate, arrange events and have made themselves part of Shay’s campaign, you are all amazing, thank you xx

      Update from the Page owner

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    3 years ago

    Sharon started crowdfunding

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    Page last updated on: 7/3/2017 08.46

    Supporters

    156

    • Anonymous

      Anonymous

      Jul 3, 2017

      Sharon, a small gift from Aus from a friend of Father Stephen Hewitt who told me about Shay.

      £50.00

    • Paul Waites

      Paul Waites

      Jun 21, 2017

      £30.00

    • Shaun and Kim Turner

      Shaun and Kim Turner

      Jun 19, 2017

      Good luck with your fund raising we hope you reach your target

      £30.00

    • Phil & Pauline Anderson

      Phil & Pauline Anderson

      Jun 9, 2017

      £30.00

    • Claddagh Gaels Lgfc

      Claddagh Gaels Lgfc

      Jun 6, 2017

      We hope you raise your target, thank you for a great day at the family fun day.

      £100.00

    • David and Gill Riches

      David and Gill Riches

      May 26, 2017

      Really good luck with the fundraising and hope you meet your target very soon.

      £20.00

    • Alice Llelliott

      Alice Llelliott

      May 26, 2017

      Money for the balloon race that Debbie, Amber and Jade did! Alice and Becky x

      £20.00

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    About Crowdfunding
    About the fundraiser
    Sharon

    Sharon

    London, United Kingdom

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