Weʼve raised £6,490 to Build a Pallative Care Suite for Shay Murray
- London, United Kingdom
- Funded on Saturday, 15th July 2017
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Shay in April 2008 was diagnosed with Pearson's Syndrome a Mitochondrial disease with no cure. Pearson syndrome is very rare, less than a hundred cases have been reported worldwide. Not many people know about Mitochondrial Disease, there are few supportive treatments relieving symptoms but at this present time there is no cure.
Our mitochondrial cells are like power stations in our bodies, supplying the energy every cell needs to function. These cells make up our organs and tissues within our bodies. Shay’s cells do not have the energy to make his body organs work properly for example, if a car does not have enough battery power, the car will not start or suddenly stop, no matter how new that car is.
Shay is nearly 10 years old and this disease is progressing with devastating effects on his health. His one love is his Xbox and he is now having trouble holding on to things along with vision loss, hearing loss and overall muscular weakness. This is heart breaking to see and we want him to have the comfort and quality of life before it is too late.
We are raising funds towards a palliative care suite fully equipped to make Shay more comfortable, safe and have the independence he needs in his everyday life. Every single penny helps towards our goal for Shay and we would like to thank all of our supporters who have previously donated, thank you.
- 2 years ago
Sharon2 years ago
Each day we are astounded at the generosity of everyone. When we first started this campaign it seemed like our original target of £30000 was always out of reach. We are really pleased to announce with our donors online and offline fundraising we are now at the £14000 mark! I would like to thank everyone who continues to donate, arrange events and have made themselves part of Shay’s campaign, you are all amazing, thank you xx
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Jul 3, 2017
Sharon, a small gift from Aus from a friend of Father Stephen Hewitt who told me about Shay.
Jun 21, 2017
Shaun and Kim Turner
Jun 19, 2017
Good luck with your fund raising we hope you reach your target
Phil & Pauline Anderson
Jun 9, 2017
Claddagh Gaels Lgfc
Jun 6, 2017
We hope you raise your target, thank you for a great day at the family fun day.
David and Gill Riches
May 26, 2017
Really good luck with the fundraising and hope you meet your target very soon.
May 26, 2017
Money for the balloon race that Debbie, Amber and Jade did! Alice and Becky x
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