In July 2023, Brodie (2 years old) was diagnosed with Spinal Muscular Atrophy (SMA) Type 2.

SMA is a genetic neuromuscular disorder caused by a mutation in the SMN1 gene. This gene codes for the main protein needed for the motor neurons of the spinal cord to survive. Without it there is a lost connection between the brain and the skeletal muscles, which leads to degradation of the muscles. Simply put, Brodie will likely not walk unaided as he will lose mobility in his limbs over time.

It is the leading genetic cause of infant death.

In this cost of living crisis, Brodie’s wonderful parents will be faced with significant challenges in the coming years to fund additional physio sessions, future wheelchairs and adaptations to their home to make life easier for Brodie.

Brodie deserves the best possible treatment and care, but it comes at a cost.

On 14th September 2024, the London Chargers rugby league team will be cycling from London to Brighton to raise as much money as possible for Brodie’s future. If we can reach £4K, that will pay for up to 12 months of additional physio. Anything more we can raise will go towards a manual wheelchair.

Please donate what you can.

Thank you