Your friends are fundraising. Don't miss out, opt in.

We did it!

Nicola Bloxsidge raised £3,871 from 56 supporters.

or

Start your own crowdfunding page

Closed 16/09/2017

0

%

£3,871raised of £8,000 target by 56 supporters

    Weʼve raised £3,871 to to fund a speech generating eye gaze for our profoundly disabled daughter

    Funded on Saturday, 16th September 2017

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

    The page owner is responsible for the distribution of funds raised.

    Story

    Ella is a beautiful, funny and loving 11 year old, but…
    she has Rett Syndrome.

    Imagine the symptoms of Autism, Cerebral Palsy, Parkinson’s, Epilepsy and Anxiety Disorder… all in one little girl.
    Rett Syndrome is a serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear at about 12-15 months. It is potentially a life shortening condition, but some girls have lived until middle age.

    Ella is unable to speak or use her hands. She cannot sit down or stand up on her own or walk far without help. She has breathing problems, epileptic seizures, and scoliosis. However, we believe Ella understands her environment and what is said to her, but crucially has no way to respond. She is locked inside a body that simply doesn’t function properly.

    Imagine not being able to ask for a drink when you want one.

    Imagine being unable to sit down when you are tired and not being able to ask for help.

    Imagine having a headache and not being able to tell anyone.

    This is what it is like for Ella every day.

    As Ella is unable to use her hands, using an eye controlled speech generating device has the ability to unlock her potential. Many girls with Retts have successfully used eye gaze systems to communicate. Using such a device, Ella would at last be able to tell us some of her thoughts, wishes and needs, which would transform her life.

    Here is a great link to further information on Rett Syndrome and the use of the Eye Gaze systems:
    http://rettuniversity.org/

    https://www.tobiidynavox.com/en-GB/users-conditions/user-conditions/rett-syndrome/

    Updates

    0

    Nicola Bloxsidge

    Updates appear here

      1 year ago

      Nicola Bloxsidge started crowdfunding

      Leave a message of support

      Page last updated on: 9/3/2017 8:35 PM

      Supporters

      56

      • linda connor

        linda connor

        Sep 3, 2017

        Ella,My Mum has made some beautiful bags that I plan to sell to raise money for your computer. Made our first sale on Saturday at the BDWCA 2 up time trial.Hopefully more to come soon,All the best,

        £15.00

      • Anonymous

        Anonymous

        Jul 26, 2017

      • Duncan Maskell

        Duncan Maskell

        Jul 22, 2017

        Hope you reach your goal!

        £10.00

      • Alex Stewart-Jones

        Alex Stewart-Jones

        Jul 13, 2017

        Best wishes. We hope you reach your goal soon for Ella. Alex, Delphine & children xxx

        £15.00

      • Trevor Masters

        Trevor Masters

        Jul 6, 2017

        Sorry we are unable to make the Quiz - as we are away - but hope you all have a fun evening and good luck with raising the funds for Ella - such a worthwhile cause.love Val and Trevor x

        £50.00

      • Ruth Killgren

        Ruth Killgren

        Jul 5, 2017

        What a lovely happy family picture. Do hope you reach your target very soon.

        £100.00

      • Gary and Sally Whittingham

        Gary and Sally Whittingham

        Jul 4, 2017

        We hope you get to your target soon for this vital piece of equipment for Ella.

        £50.00

      Great people make things happen

      Do you know anyone in need or maybe want to help a local community cause?

      Create you own page and donʼt let that cause go unfunded!

      About Crowdfunding
      About the fundraiser
      Nicola Bloxsidge

      Nicola Bloxsidge

      Report this Page

      * JustGiving crowdfunders pay a small fee for our service. Find out how much it is and what we do for it.