❤️Ely ❤️

This update is one that we were hoping would never be written.

This morning we had Elys MRI results meeting and the news is not good.

The scan has shown that another tumour has grown and has doubled in size since his last scan. it’s seems other areas are appearing too, which are based around his main bloodline on the left hand side of the brain.

Surgery could take place but they would not be able to remove it all and would lead to another extensive period of recovery time with no prospect of a benefit to Ely.

All chemo options have been used in the treatment he’s already received and he is not able to receive any further radiation as he has had the maximum dose.

We have some meetings this week to discuss the best plan for Ely and his care plan moving forward. We sat down and talked with Guy about todays meeting and as you can imagine it was a hard talk to have but we all agreed Having Lots of fun and Making memories is our mission now as we do know how long we have got.

Ely is completely oblivious to all of this and is his happy mischievous self. He had the 2 play team staff wrapped round his finger with nearly the whole play room toys out and he’s been sat with his demanded happy meal 🥰🥰🥰 we also found that he’d stuffed 2 playing cards in the dvd player!! 😳🤣🤣

please help us rasie as much funds as we can for the Fearnely 4 so they can make as many special memories as possible 💙

The Fearnley 4 xxxx