Weʼre raising £15,000 to Send Ethan to Florida for a trip of a lifetime before he loses his sight (UPDATED 29/11/16 - £ 11,189 raised offline towards this target)
- Dorset, UK
- Health and medical
- Time left
- 20 days to go
Crowdfunding is the new way to raise money for a personal cause on JustGiving.
Help send Ethan and his family on a holiday to Florida - Ethan Burnley who is 8 years old is struggling with a rare syndrome, Aarskog. Only a minority of our huge populations sadly has this disease, precisely only 12 children are known to have it in the whole of the UK. (His twin brothers also have the syndrome). The syndrome has left poor Ethan, with very slight autism and he is slowly losing his sight, sadly resulting in a loss of eye sight forever by the predicted age of 10 or sooner. Mobility problems are also part of his illness, he finds walking and especially running a huge and tiring task. Shopping for what we take for granted is difficult especially for shoes as this isn't simple for little Ethan. He has had 3 operations to help move his legs but sadly it has not helped him yet. Shoe shopping is challenging because his feet are unable to fit in normal shoes, meaning he has special ones made for him at the hospital. However as he's such a huge Bournemouth football fan, he bravely forced his feet into trainers to enable him to play football. Due to the severe pain in his legs, Ethan manages school but it's difficult for him as be only has 3 to 4 hours of sleep a night due to the pain. As he is due more surgery to improve his mobility, it will result in more time away from school, which is sad as he really needs school, to keep him motivated and happy. If his operations weren't done he would end up in a wheelchair, which shows you how crucial they are. His caring family are trying to make as many happy memories for poor Ethan before his sight is upsettingly taken away from him for good. This page is to send Ethan and his family on a once in a lifetime trip to Florida before he loses his sight.
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Nicky Kay2 months ago
We have some funds raised already and will upload them as offline donations once we figure out how to do it :-) any advice would be much appreciated thank you :-)
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Nicky Kay started crowdfunding
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Dec 9, 2016
Dec 4, 2016
Well done Matty Legg for your part of the deal, here is my part. Ethan I hope you have an amazing trip xxxxx
Dec 4, 2016
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About the fundraiser
We are raising money to send Ethan and his family on a trip of a lifetime to Florida before he loses his sight. Time is limited as he is likely to lose his sight in the next 18 months so we need to make the trip happen asap.