33%
£3,357raised of £10,000 target by 34 supporters

Weʼre raising £10,000 to help fund Evie's bone marrow transplant journey

Location
Shilbottle, United Kingdom
Time left
81 days to go

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Story

5 year old Evie was diagnosed with Diamond Blackfan Anaemia (DBA) at 6 weeks old. DBA is a blood condition where the bone marrow fails to produce red blood cells. DBA is a very rare condition effecting only 130 people in the U.K it requires intensive treatment and has no known cure.

Evie is treated with blood transfusions every 4 weeks to bring her red blood cell count up to an acceptable level. The body normally recycles iron from old red blood cells when producing new ones but this does not happen in DBA patients. Frequent transfusions cause the accumulation of iron in the body. Iron overload can cause damage to the major organs if not properly managed and so patients must take a “chelation” drug to remove excess iron from their bodies. In Evie's case she takes an oral drug (Exjade) daily to help reduce her iron overload.

Evie's bone marrow is failing, she will require a bone marrow transplant in the next 18-24 monthss. This process can be risky and finding matched bone marrow donors can be very challenging, we have not found a donor for Evie yet.

A bone marrow transplant would mean Evie's bone marrow is replaced with healthy, donated bone marrow and she would no longer be reliant on blood transfusions. This life changing transplant will give Evie the chance to lead a normal life.

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    a month ago

    Rebecca Campbell started crowdfunding

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    Supporters

    34

    • colin & Jo mossman

      colin & Jo mossman

      Dec 1, 2016

      love from colin, Jo & the girls hope & pray all goes well

      £1,000.00

    • Samantha Jayne Mossman

      Samantha Jayne Mossman

      Nov 28, 2016

      Love from John & Sam xx

      £1,000.00

    • Samantha Jayne Mossman

      Samantha Jayne Mossman

      Nov 28, 2016

      Love from Aunty Audrey & Uncle Jack xx

      £150.00

    Rebecca Campbell

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    About the fundraiser
    Rebecca Campbell

    Rebecca Campbell

    Shilbottle, United Kingdom

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