10%
£4,014raised of £38,000 target by 130 supporters

Weʼre raising £38,000 to Fynn's First Footsteps

Location
Plymouth, United Kingdom
Time left
105 days to go

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Story

Fynn is two years old and an identical twin born in August 2014 along with his brother Leo at 30 weeks with twin to twin transfusion. Fynn weighed just 3.5lb and his Leo 1.7lb. They fought for their lives for 2 months and were able to leave the hospital in time for their first Christmas.

It became apparent by the age of one that Fynn was not reaching his milestones and was still unable to sit, crawl or support himself in anyway. Finally it was confirmed sadly that Fynn had Spastic Cerebral Palsy. This makes Fynn's muscles stiff and his movements jerky. His increased muscle tone can make movements difficult, sometimes impossible. Fynn does not sleep at night due to painful muscle spasms which is alleviated slightly by medication but he still needs turning over from where he is just too exhausted. This quite often leaves him very tired and aching the next day and the cycle begins again.

Fynn is not able to support himself at all therefore a lot of equipment is required for him to participate in activities with others in nursery, out and about and at home. Fynn's frustration propels him to keep up with his twin brother and the determination has enabled him to achieve small steps like holding a fork and spoon in his own way. Something we perhaps all take for granted.

In May2017 we met with consultants at Bristol Royal Childrens Hospital to see if Fynn was a suitable candidate for Selective Dorsal Rhizotomy (SDR). SDR is the dividing and cutting of nerves in the spinal cord. We were told that he was an excellent candidate. This operation would mean that most of his painful spasms would cease and that this would lead to him hopefully walk unaided. The fall then came that it is not currently funded on the NHS.

Please can you help us to fund his operation, the current cost is around £38,000. This would change Fynns life forever. As his parents it parents it is something we would make the ultimate sacrifice for, for Fynn to be able to walk with his brother.

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Updates

1

  • Sophie Miller

    Sophie Miller

    15 days ago

    Sophie Miller

    Hi, I'm Fynn, i'm 2yrs old and have Cerebral Palsy. Yesterday my Mummy and Daddy found out I'd be a great candidate for an operation that means I could walk on my own! I might even be able to chase after my twin brother, Leo! The operation is very expensive, but all my family and friends are going to raise money for me through this page and the Just Giving site below. Please follow me and my journey and please donate where you can! #fynnsfirstfootsteps #cerebralpalsy #crowdfunding #ttts

    Update from the Page owner

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15 days ago

Sophie Miller started crowdfunding

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Supporters

130

  • Simon Rawlinson

    Simon Rawlinson

    May 27, 2017

    Good luck

    £50.00

  • Kevin Bennett

    Kevin Bennett

    May 26, 2017

    £10.00

  • Kate Hingston

    Kate Hingston

    May 23, 2017

    What gorgeous boys! After waking up to such terrible news in Manchester today it's nice to be able to do something positive and give the gift of hope. Good luck on reaching your target x

    £10.00

  • Samantha Ball

    Samantha Ball

    May 22, 2017

    Sent with much love from your SW family ❤️

    £90.00

  • Anonymous

    Anonymous

    May 22, 2017

    Such a great cause, hope you meet your target

    £10.00

  • Robert Hazell

    Robert Hazell

    May 22, 2017

    I wish you all well

    £10.00

  • David Smith

    David Smith

    May 20, 2017

    Hope you get that funding Kate! Look very positive.

    £50.00

Sophie Miller

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About the fundraiser
Sophie Miller

Sophie Miller

Plymouth, United Kingdom

Raising money for 2 year old Fynn- diagnosed with Spastic Cerebral Palsy a year ago, Fynn has now been found to be a suitable candidate for Selective Dorsal Rhizotomy (SDR). A surgery that would enable Fynn to walk unaided and hand in hand with his twin brother Leo.

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