Weʼve raised £19,925 to SAVE DREW BARKER - WRIGHT AS HE BATTLES WITH A RARE AND AGGRESSIVE CHORDOMA TUMOUR/CANCER. A NEW DIAGNOSIS, A NEW HOPE!!
- Brecon, United Kingdom
- Children and youth
- Time left
- Funded on Monday, 27th February 2017
Crowdfunding is the new way to raise money for a personal cause on JustGiving.
Meet Drew - he's currently in Birmingham Children's Hospital suffering from an aggressive and rare tumour. At first, Drew was diagnosed with a rare Rhabdoid Tumour. However, after weeks of testing, doctors have now discovered that it is in fact a Chordoma Tumour, which is even rarer and equally more difficult to treat as the research and diagnosis about them is so limited.
Chordoma is a rare primary bone cancer. The bones involved are those at the base of the skull, the vertebrae and the coccyx at the base of the spine.
In Drew's case the tumour, which initially presented at the base of his skull has now spread to his lungs and right arm, which is consistent to the symptoms of Chrordoma cancer. The ideal situation is to remove it and Drew is currently undergoing sessions of chemotherapy to see if this is possible. However, removal of the tumour is fraught with risks as it is so close to the spinal cord, brainstem and nerves around the base of the brain - it is difficult to remove the tumour completely without doing damage and requires highly specialised care. Whilst Chordomas are generally slow growing they tend to recur after treatment.
There are only a handful of centres globally who have the expertise to treat Chordoma Cancer. It is very likely that Drew and the family will be sent away to America/Europe to have specialist care and undergo treatment like Proton Beam Therapy/Clinical Trials. Whilst some of the costs may be supported by the NHS, the majority won’t. The next few weeks really are now critical for Drew!
The impact on the family has been instant and deeply emotional. Mel and Jon are currently bedside with Drew to ensure he gets 24/7 support. The sad thing about this story is, that it took six years for Mel and Jon to get Drew and now the fight is on to keep their only child.
Together, we can smash this target and get this boy the best treatment out there - every donation will ensure that we give Drew a chance to enjoy life once more.
Spencer Williamsa month ago
It is with broken hearts that we are letting you know that Drew slipped into a coma 72 hours ago. Drew’s parents were told in ICU that there was nothing more that they could do for him clinically, so they chose to bring Drew home yesterday. After a peaceful night with his mum and dad, he left us early this morning for a better place, where he will feel no more pain.We would like to thank everybody for their fundraising efforts and messages. Mel and Jon, Drews parents have asked us to close the JG page whilst they as a family regroup. Spencer
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Feb 25, 2017
Feb 23, 2017
Feb 22, 2017
You are all in our thoughts and prayers. Hang in there Drew, looking forward to meeting you when I come over :)
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