In March 2020 Harry was diagnosed with Duchenne Muscular Dystrophy a life limiting muscle wasting condition. A condition which also attacks the heart and lungs. We were told as Parents that he would die and not only that he would lose the ability to walk, feed himself, dress himself, hug family and friends and need ventialtion 24/7 alongside painful surgery. His life expectancy could be as short as late teens and early 20s.

Harry is a very brave boy with constant hospital visits and awful procedures such as bone infusions which make him very sick. He also has to take steroids and now will need to top these up with heart medication. Despite this he tries to live the best life he can. Harry recently told me that he is scared that he will die. My heart is beyond broken. We love him so much and just want him to have the best chance. I would do anything for him and just want him to be able to have a enjoyable life where he can walk and hug those he loves at the very least. Any money donated large or small will be used to help Harry access treatment in America which costs about £10000 with travel as well. We strongly believe that this treatment has supported Harry in being able to walk for longer. The money donated will help to further adapt his house and get the equipment that he needs which is not freely available on the NHS. Please support us as even a small difference will make a big impact.

Suggested donation amounts are as follows:

£1 as Harry was diagnosed on the 1st of March.

£9 as Harry is nine.

£26 to represent the start of the part of his missing dystrophin gene

£79 to represent the 79 parts that make up a fully functioning dystrophin gene. Harry is missing part of his which means his muscles can't repair.