Weʼre raising £2,000 to Give Your H❤️RT To Milla's SWAN and take her to Disneyland!
- Manchester, United Kingdom
- Disability support
- Time left
- 14 days to go
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Milla Hart suffers from a unknown disease,also know as "SWAN" ,it is a pathological set of symptoms that does not represent any of the known diseases.... in other words "syndrome without a name" ; SWAN <3
I felt compelled to do something special for this little girl as i have a son her age and am in total awe of her family who seem so positive every day even though their life must be extremely hard,when i mentioned to my friends what i would like to do they all wanted to help and now i will copy exactly what she suffers from in her mothers words <3
"Milla was born with a diaphragmatic eventration which meant only one lung was functioning properly, she was also born with 2 congenital heart defects and was is intensive care where she was given a 30% chance of surviving. She came home after 6 weeks and had problems with recurrent chest infections and breathing problems until they decided at 5 months old to do surgery on her diaphragm and as a result managed to increase her lung capacity by 50%. She has global development delay, GORD, her stomach is now completely useless and doesn't work at all meaning she is fed into her jejunum (part of her small intestine) she has malformations of her bones meaning she can't walk properly, although she can still walk but she falls over a lot and gets tired easily. Absent seizures, she's now at the point where her stomach will never work again and they are scheduling surgery for her to have a separate tube put into her jejunum as the one she has now keeps failing. She's also going to need surgery to insert a portacath under her skin because they can't get an IV in as her veins are too scarred from constantly needing IV fluids and antibiotics. She is classed as a SWAN and it's a blanket term for children who are living without a genetic diagnosis (syndrome without a name) they told us that what Milla has is likely so rare there isn't any testing for it yet"
Please help make this little girl and her family smile BIG <3
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Louise Lennox started crowdfunding
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Nov 26, 2016
Nov 25, 2016
Good luck milla xx
Nov 25, 2016
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About the fundraiser
Manchester, United Kingdom
I would like to spend the next few months or as long as it takes to raise enough money to send Milla and her family to Disneyland. They have been through a hell of a lot and still remain so positive,it would take a tiny donation from everyone i know to make this dream come true.